Dwarfism doesn't prevent 3-year-old boy from living life
May 02, 2013
Ethann Valdez's story is second in Driscoll Children's Hospital's 60th anniversary series
Ethann Valdez, 3, was born with achondroplasia, a type of dwarfism. He's been a patient at Driscoll Children's Hospital since he was born.
CORPUS CHRISTI - Darting around a waiting area at Driscoll Children's Hospital with a huge smile on his face, Ethann Valdez has the seemingly endless energy of any 3-year-old boy. He doesn't appear to be bothered much by the life-threatening disorders that have affected him throughout his young life - and that's fine with his parents.
"We treat him like a normal child," said his mother, Brittney Guerrero. "We take him outside so he can be a boy and not live in a bubble. He knows sign language and can do handstands. He does seem to wonder why people look at him sometimes."
Tired out after a burst of energy, Ethann slows down to catch his breath. He inhales and exhales through a tube that protrudes from his throat called a trach, making a wheezing sound. He received a tracheotomy because his airway is abnormally narrow, referred to as airway stenosis, his mother said.
Airway stenosis is just one of the medical conditions that make Ethann a special member of the Driscoll Children's Hospital family. He was born with achondroplasia, a type of dwarfism caused by a genetic defect that occurs in about one out of 26,000 to 40,000 babies, according to WebMD.com. That was accompanied by a variety of health issues that have brought Ethann and his family to Driscoll over the past three years. He regularly sees a pediatric cardiologist, pulmonologist, otolaryngologist and geneticist at Driscoll.
Just about anywhere Ethann goes at the hospital, someone recognizes him.
"Driscoll is like our second family," Guerrero said. "A lot of people know Ethann here. They're part of our support system."
Recently, a major concern for Ethann's family has been the narrowing of his heart valves, a condition related to his dwarfism. Heart surgery might fix the problem, but it's too risky to perform at this time because of his other medical issues, said Umang Gupta, MD, pediatric cardiologist at Driscoll Children's Hospital.
Ethann's parents employ nurses to help with his round-the-clock healthcare needs. Like most people who interact with him, licensed vocational nurse Janine Hobrecht adores her patient.
"He's a unique little boy," said Hobrecht, who cares for Ethann Monday through Friday. "He's very talkative and likes to have fun. He's enjoying his life and he's OK with his disabilities."
Paige Cooper, a registered nurse at Driscoll's Pediatric Cardiology clinic, is another of Ethann's "fans." She said he's thriving despite his many obstacles, thanks in large part to his parents.
"Ethann and his family are so positive and a joy to be around," Cooper said. "His family is eager to learn all they can about his disorders. They embrace his uniqueness, challenge him daily and celebrate his every accomplishment."
Guerrero said she appreciates receiving straightforward information from physicians regarding her son's health, even if it isn't pleasant. She and Ethann's father, John Matthew Valdez, have resolved themselves to stay positive regardless of what the future holds.
"Whatever happens, we'll be OK," Guerrero said. "What keeps me going is knowing nobody has an expiration date. We can go anytime. So we should enjoy each other's presence. Every moment is important."
This is the second in a series of stories about extraordinary patients that Driscoll Children's Hospital is sharing throughout 2013 as part of its 60th anniversary celebration.
Driscoll's Teddy Bear Hospital is a chance for patients to be the doctors
April 08, 2014
WHAT: Patients will be the doctors tomorrow during a Teddy Bear Hospital organized by the Stripes Child Life Program at Driscoll Children's Hospital. The event allows children to become more familiar with the medical equipment and procedures involved in their treatment. They'll choose their teddy bear, give it a name and, with the help of Child Life Specialists and other Driscoll staff, measure its height and weight, place an IV and draw labs, give it an X-ray, attach an anesthesia mask for surgery and put an arm or leg in a cast. The Teddy Bear Hospital and the Stripes Child Life Program at Driscoll Children's Hospital are made possible by a $1 million donation from Stripes convenience stores.
WHEN: 1:30 p.m. Wednesday, April 9, 2014
WHERE: Driscoll Children's Hospital auditorium, 3533 S. Alameda St.
April is Child Safety Month
April 01, 2014
Driscoll Children's Hospital's Injury Prevention Program team
CORPUS CHRISTI - Motor vehicle crashes are the leading cause of death for children age one through 12 years old. According to National Highway Traffic Safety Administration (NHTSA) crash data, in 2010 almost an average of two children were killed and 325 were injured each day. This fatality rate could be reduced by half if the correct child safety seat had been used. Here are some great tips from Driscoll Children's Hospital and Kohl's Cares to help protect your child while in the car.
Car seat recommendations for children:
- Select a car seat based on your child's age and size.
- Choose a seat that fits in your vehicle and use it every time.
- Always refer to your specific car seat manufacturer's instructions; read the vehicle owner's manual on how to install the car seat using the seat belt or LATCH system; and check height and weight limits.
- To maximize safety, keep your child in the car seat for as long as possible, as long as the child fits within the manufacturer's height and weight requirements.
- Keep your child in the back seat at least through age 12.
Birth - 12 months
- Your child should remain in a rear-facing car seat. There are different types of rear-facing car seats: Infant-only seats can only be used rear-facing. Convertible and 3-in-1 seats usually have higher weight limits, allowing children to stay rear-facing longer.
1 - 3 years
- Keep your child rear-facing as long as possible. Your child should remain rear-facing until he or she reaches the maximum height and weight allowed for the seat.
4 - 7 years
- Your child should stay in a forward-facing seat with harness until he or she reaches the maximum height and weight limit allowed for the seat. Once the child has outgrown the harness, the child is now ready for a booster seat.
8 - 12 years
- Keep your child in a booster seat until he or she is big enough to fit into a seat belt properly. The law in Texas requires all children younger than 8 years old, unless they are taller than 4 feet 9 inches, to be properly restrained in a child safety seat.
Kohl's Keep Your Kids Safe, Driscoll Children's Hospital's Injury Prevention Program, in partnership with Kohl's Cares, offers free car seat inspections. To make an appointment and have your car seat checked to ensure the safety of your child, call (361) 694-6700. http://www.keepyourkidssafe-kck.com/
Driscoll patients go to Spurs game courtesy of generous donors
March 28, 2014
WHAT: Five Driscoll Children's Hospital patients and their parents or guardians will gather at the hospital's lobby and depart for San Antonio to see a Spurs game as part of a live auction package purchased at this year's Fiesta de los Niños. Steve and Jessica Johnson of JSJ Services, Inc. have purchased this item at Fiesta for the last six years, donating a total of $152,250 to Driscoll Children's Hospital.
WHEN: 4 p.m. Saturday, March 29
WHERE: Driscoll Children's Hospital main lobby, 3533 S. Alameda St.
Driscoll patients to be treated to Child Life Month celebration
March 10, 2014
CORPUS CHRISTI - The Stripes Child Life Program at Driscoll Children's Hospital will celebrate Child Life Month with a superhero-themed party for in-house patients tomorrow. The sixth annual event is designed to make hospitalization a little more pleasant for children by providing a distraction from their illness and an opportunity for socialization, self-expression and normalization.
March is Child Life Month
"Child Life professionals strive to promote coping and reduce anxiety of children and their families. They embrace the power of play to teach children about their diagnosis, prepare for and support during painful procedures," said Michelle Goodman, director of the fourth floor and the Stripes Child Life Program at Driscoll.
Driscoll Children's Hospital began a Child Life program in 1985. Today, Driscoll has nine Child Life Specialists who provide service to the Emergency Room, in-patient units 4T, 6T and 7T, the Pediatric Intensive Care Unit, Neonatal Intensive Care Unit, Renal Dialysis, Driscoll's Cancer and Blood Disorders Center, Day Surgery and Radiology.
Activities at the celebration will include face painting, making their own superhero masks and capes, superhero bowling and dart board, and photo booth. Employees from Stripes convenience stores will provide a carnival-style prize wheel and store coupons.
- What: Child Life Month Superhero Celebration for Driscoll patients
- When: 1:30 p.m. Tuesday, March 11
- Where: Driscoll Children's Hospital auditorium, 3533 S. Alameda St.
12th annual Radiothon will broadcast live from Driscoll Children's Hospital
March 05, 2014
CORPUS CHRISTI - On Friday, March 7, K-99 (KRYS 99.1 FM) will team up with Driscoll Children's Hospital for the 12th annual Radiothon. The one-day event will be broadcasted live from the main lobby at Driscoll Children's Hospital beginning at 6 a.m.
Listeners can tune in to hear patients, parents, physicians and staff share inspirational stories of hope and healing. Over the past decade, K-99 listeners have helped raise more than $500,000 to benefit the patients and services provided at Driscoll Children's Hospital.
For more information or to donate, contact Driscoll's Development Department at (361) 694-6401.
- What: 12th annual K-99 Radiothon benefiting Driscoll Children's Hospital
- When: 6 a.m. - 6 p.m. Friday, March 7
- Where: Driscoll Children's Hospital main lobby, 3533 S. Alameda St.
Valdez brings neurology expertise to Driscoll
February 26, 2014
CORPUS CHRISTI - Marcos Valdez, MD, has joined Children's Physician Services of South Texas at Driscoll Children's Hospital as a pediatric neurologist. Dr. Valdez was previously in private practice in McAllen, Texas for 10 years. He completed his residency in pediatrics at Scott & White Memorial Hospital - Texas A&M College of Medicine in 1999 and a fellowship in clinical neurophysiology at Texas Children's Hospital - Baylor College of Medicine in 2003. Dr. Valdez earned his medical degree in 1987 at Universidad Autonoma de Nuevo Leon Medical School in Mexico. He is certified in neurology with a special qualification in child neurology by the American Board of Psychiatry and Neurology.
Páez receives certification in pediatric endocrinology
February 17, 2014
CORPUS CHRISTI - Ana Maria Páez, MD, pediatric endocrinologist at Driscoll Children's Hospital, recently passed an exam administered by the American Board of Pediatrics and is certified in pediatric endocrinology. Dr. Páez completed a pediatric endocrinology fellowship at the University of Texas Health Science Center at San Antonio, where she performed her pediatric residency from 2007 to 2010. She joined Driscoll in 2013.
Booth receives certification in child abuse pediatrics
February 17, 2014
CORPUS CHRISTI - Ada Booth, MD, child abuse pediatrician with Driscoll Children's Hospital's Child Abuse Resource Evaluation (CARE) Team, recently passed an exam administered by the American Board of Pediatrics (ABP) and is certified in child abuse pediatrics. Dr. Booth graduated from a child abuse pediatrics fellowship at Nationwide Children's Hospital in Columbus, Ohio in 2011. She is also certified by the ABP in pediatrics.
Driscoll pediatric cardiologist recognized as distinguished alumnus at Louisiana Tech University
February 17, 2014
CORPUS CHRISTI - Driscoll pediatric cardiologist Brandon Lane Phillips, MD, FAAP, FACC, was recently recognized by The College of Engineering and Science at Louisiana Tech University as one of 14 of their 2014 Distinguished Alumni. Chosen alumni have distinguished themselves during their careers and in service to the university.
Dr. Phillips joined Driscoll in 2012 and is certified by the American Board of Pediatrics. In 2010, Dr. Phillips completed a fellowship in pediatric cardiology at the Mayo Clinic in Rochester, Minn. His clinical interests include non-invasive imaging, outpatient cardiology and adult congenital cardiology.
Mayoral proclamation will be read at Driscoll Children's Hospital for Congenital Heart Defect Awareness
February 13, 2014
CORPUS CHRISTI - The week of Feb. 10-14 is recognized in the US as Congenital Heart Defect (CHD) Awareness Week (see www.tchin.org/aware/). In an effort to bring awareness to the community, Driscoll Children's Hospital has arranged for Corpus Christi Mayor Pro Tem Chad Magill to proclaim Feb. 14 Congenital Heart Defect Awareness Day. The proclamation will be read at Driscoll Children's Hospital in the Auditorium at 3 p.m. during a CHD celebration for hospital staff.
What: Mayoral proclamation for Congenital Heart Defect Awareness Day
When: 3 p.m. Feb. 14
Where: Driscoll Children's Hospital (Auditorium - 1st floor) 3533 S. Alameda Corpus Christi, TX 78411.